Support and care management for people living with ALS/MND is underpinned by five basic principles:
- Management of the disease determined by the needs and wishes of the person living with ALS/MND, treating the person with ALS/MND with care, respect and dignity
- Timely response to identified needs
- Access to a coordinated and integrated care plan
- Regular monitoring and review of the person’s condition, and appropriateness of the care plan
- Information about the person’s medical condition held in confidence
Symptom management
Effective management of symptoms is one of the primary goals of ALS patient care (Miller and others 2009b). read more
Wellbeing and support needs
There is no cure for MND and no effective treatment... maintaining quality of life and independent living is a priority for people living with motor neurone disease (MND Australia 2009). read more
