MND Aware is a web-based awareness training about motor neurone disease (MND), for health and community care professionals, developed by the Motor Neurone Disease Association of NSW.
Developed in 2011, the 26 MND Aware online training sessions provide health and community care professionals with a basic understanding of MND and the impact of MND on the life of an individual, their carer and family. The sessions have been specifically developed for home and community care workers, intake, information and referral officers, case managers, health and residential care workers. This project has been supported by NSW Government Family & Community Services, Ageing, Disability and Home Care (ADHC) and MND NSW.
Project manager
- Gina Svolos - Manager, Family Support, MND NSW
Project officer
- Penny Waterson - Information Resources Coordinator, MND NSW
Project assistance
- Kristina Dodds - Education and Carer Support Program Coordinator, MND NSW
Volunteer assistants
- Joy Pogson
- Debra Larizza
- Jayasooriah
Steering committee
- Graham Opie - (Chair) CEO, MND NSW
- Gordana Barbaric - Senior Policy Officer, Attendant Care and Physical Disability Unit, ADHC
- Marie Jolley - Manager, Attendant Care and Physical Disability Unit, ADHC
- Melaney Mitchell - Service Support Development Officer, Performance and Quality Improvement Unit, ADHC - Metro North
- Gina Svolos - Manager, Family Support, MND NSW
- Penny Waterson - Information Resources Coordinator, MND NSW
Project advisory group
- Peter Butcher - Branch Manager, Home Care Bathurst
- Carolyn Fish - Information Referral and Intake, ADHC Northern Region
- Auria Garcia - Senior Policy Officer, Attendant Care and Physical Disability Unit, ADHC
- Valentina Hazell - Senior Project Officer, Information, Referral and Intake, ADHC Metro South Region
- Sue Kiernan - Home Care Hunter
- Kathy Leayr - Home Care Hunter
- Jan McGrath - Branch Manager, Home Care Bega
- Jan Martin - Service Coordinator, Home Care Central Coast
- Kellie Martin-Towers - Information Referral and Intake, ADHC Western Region
- Yvonne Muller - Acting Branch Manager , Home Care North West Area Community Options
- Kevin Reilly - Regional Manager, ADHC Southern Region
- Michelle Russell - North Coast Aboriginal Home Care
- Marcelle Sawyer - Acting Regional Manager, Home Care Metro North
- Pam Wells - Home Care Dubbo
Project consultation group
- Over 100 health and community care professionals who contributed to the MND Aware project content consultations
- MND NSW staff
- Carol Birks, CEO MND Australia and Inez van Polanen, MND Victoria
Web developer
MND Aware images
- Amy Balsdon
- Penny Waterson
Professional voiceover
- Paul Armstrong*
- MND Aware Session 4 Case management and MND
- MND Aware Session 6 Planning for future care needs - Advance care planning
- MND Aware Session 8.1 MND NSW
- MND Aware Session 15 Symptom management - Movement and joints
- Keelie Hartigan
- MND Aware Session 7 End of life care
- MND Aware Session 9 Training, support and resources for health and community care professionals
- Jon Hopper
- MND Aware Session 11 Symptom management - Swallowing and nutrition
- MND Aware Session 13 Symptom management - Gastrostomy
- MND Aware Session 18 Symptom management - Bladder and bowel
- MND Aware Session 23 Wellbeing and support needs - Personal care and home care
- MND Aware Session 24 Wellbeing and support needs - Psychosocial and spiritual needs
- MND Aware Session 25 Wellbeing and support needs - Carer wellbeing and support
- Meg McIntosh*
- MND Aware Session 1 What is MND
- MND Aware Session 2 MNDcare Approach - A person-centred approach
- MND Aware Session 3 The health and community care team
- MND Aware Session 14 Symptom management - Communication
- Julian Ramundi
- MND Aware Session 16 Symptom management - Cognition
- MND Aware Session 17 Symptom management - Emotional lability
- MND Aware Session 19 Symptom management - Fatigue and insomnia
- Kathryn Schuback
- MND Aware Session 12 Symptom management - Saliva and mouth care
- MND Aware Session 20 Wellbeing and support needs - Information and planning
- Tim Stackpool
- MND Aware Session 22.1 Wellbeing and support needs - Daily living and mobility - Accessing MND Aware MND aids and equipment in NSW and ACT
- Session 26 Wellbeing and support needs - Children and families
- Julia Tan
- MND Aware Session 5 Needs of people living with MND - An overview
- MND Aware Session 10 Symptom management - Breathing
- Nikki Thornton
- MND Aware Session 21 Wellbeing and support needs - Daily living and mobility - Aids and equipment
- *recorded with the support of 2RRR 88.5 FM by Rhonda Doyle and Ron H (DOCRon)
Additional voiceover
- As acknowledged in session
Video
Photos
- As acknowledged in session
MND NSW welcomes your feedback on the MND Aware sessions. Click here to open the feedback form. You will be returned to this site after you have submitted your feedback.
