2012 National MND Conference
Living Better for Longer - Care Advocacy Research
MND Australia is pleased to announce the 6th National MND Conference hosted by MND South Australia. The conference will be held at the Stamford Grand Adelaide Hotel in Glenelg, South Australia on Monday 10 September.
Conference Themes:
Care: Client focused initiatives; Best practice in symptom management and care
Advocacy: Enhancing service delivery: innovation, opportunity and challenges
Research: Advances in knowledge and clinical care
For:
- Allied health professionals
- Case managers
- Community care providers
- General practitioners
- Government representatives
- Medical specialists
- Nurses
- Palliative care staff
- Personal Care workers
- Residential aged care staff
Call for Abstracts
You are invited to submit an abstract for an oral or poster presentation related to the conference themes online here by 12 June 2012.
For more information and to download the conference brochure see related documents on this page.
Keynote speakers:
Dr Peter Allcroft
Peter Allcroft is a respiratory and palliative care physician at Daw Park Repatriation Hospital in Adelaide. He runs the MND Clinic at the hospital, and is the site investigator for the Palliative Care Clinical Collaboration Studies (PaCCS). Peter is also a Board member of MND South Australia.
Dr James Burrell
James Burrell is a Senior Research Officer at Neuroscience Research Australia and Staff Specialist Neurologist at Concord General Hospital. Dr Burrell’s research focuses on the overlaps between frontotemporal dementia and motor neurone disease, as well as using neurophysiological and imaging biomarkers to link clinical symptoms and pathology in dementia syndromes.
Sue Craig
Sue Craig’s husband Derek was diagnosed with MND in 2009. Sue cared for Derek full time until his death in 2011. She will share her experience with MND and the impact of this on her life and that of her family.
Dr Bradley Turner
Bradley Turner is a neuroscientist who heads a MND research team at the Florey Neuroscience Institutes, University of Melbourne. His research aims to understand the fundamental causes of MND using cell and animal models and translate these outcomes into treatment strategies.
Registration $150 inc GST - links to online registration will be available soon
Sponsored by Biogen Idec
The 2012 International ALS/MND meetings
Hosted by the Les Turner Foundation in Chicago, Il, USA from 2 to 7 December.
2-3 December
The Annual Meeting of the International Alliance of ALS/MND Associations brings together ALS/MND Associations from around the world to share initiatives and develop strategies for fighting ALS/MND. Attendance is encouraged for all Alliance members and people living with ALS/MND are welcomed as observer/participants in the meeting.
Allied Professionals Forum
4 December
A collaboration between the International Alliance and the Motor Neurone Disease Association, the Allied Professionals Forum is focused on practice and experience for health professionals in the care and support of people living with ALS/MND.
The APF is focused on practice based evidence. It is important for health and social care professionals to help each other by sharing good practice, reporting and discussing what they did and why, and the results and outcomes they achieved. The International Alliance of ALS/MND Associations invites health and social care professionals to come to Chicago and share experiences with their international peers.
Please note that abstracts for the Allied Professionals Forum are dealt with separately from the main program of the Symposium.
The aim of the day is to foster the exchange of information about good practice and to facilitate the highest standard of care for people with ALS/MND and their carers.
Authors are given 15 minutes to present their information with 5 minutes for questions/discussion.
Key themes 2012
The overriding theme for 2012 is practice based evidence. With that in mind, we want to hear about your responses to:
Changing Practice – What practice changes have you initiated that have improved outcomes for people with ALS/MND and their families? What were the changes? How were they implemented? Do you have supporting materials?
Blue sky thinking – Out of the box, way out there ideas that have been tried, with success or failure.
Caring for carers – How do you support carers when there are conflicts in the home? What are the ethics involved with decision making? Have you dealt with issues for long term carers and managing them? Do you have programs for younger carers/teenagers?
Support for Staff – How do we keep our staff and ourselves healthy? Practices to manage stress, workloads, or difficult clients. How do you address compassion fatigue or staff who are feeling overwhelmed by their work? Are psychological support and team building part of your work? How do you support the team members as they confront issues of death and dying?
E-solutions to improve outcomes for people living with ALS/MND – What are practical applications of e-solutions? How do people access their equipment? How can we improve independence and communication for people living with ALS/MND? Are there innovative e-solutions to improve outcomes for people living with ALS/MND and their families? What about online resources, e-learning, telehealth, Skype and web conferencing as solutions to issues?
Integration of palliative care – Has your team addressed the integration of palliative care and the palliative approach? Can family/patient conferencing integrate palliative care?
International and national exchanges – Have you participated in skills transfer and staff exchange? What were your objectives and strategies? What will lead to enhancing the exchange mindset? Have you done community outreach to impoverished or under-served areas and countries?
Abstract submission closes on 25 May 2012.
Abstracts will only be accepted on the official abstract submission form click here. Abstracts must be submitted in MS Word – pdf documents or other formats will not be accepted due to the processes undertaken to produce the final abstract book.
The 23rd International ALS/MND Symposium
5- 7 December
Organised by the MND Association of England, Northern Ireland and Wales. Includes concurrent clinical and scientific sessions and a range of satellite meetings.
To register and for information on call for abstracts, the program, accommodation and associated meetings click here
