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In this month's newsletter:
- Focus on MND Aware
- Revised MND Evidence Based Fact Sheets
- Caresearch YouTube channel
Welcome to the first MNDcare newsletter for 2012.
The New Year starts with information on important advances in MND research.
In this issue:
• Overview of latest MND research
• Grants awarded for MND research in Australia
• MND around the world
• Presentations from the Allied Professionals Forum
• Ask the Experts
December focus:
- MND Aware now available on MNDcare website
- Overview of ALS/MND Symposium
This month's newsletter features:
• Launch of MND Aware
• Count down to the International Symposium
• NDIS update
• MND Models of Care
• A carer’s perspective
In this issue:
- New resources available on CareSearch to assist carers of palliative patients to administer medications
- Coming soon - MND Aware - on-line education modules for health and community care professionals
- Update on International Symposium ALS/MND, Sydney November 28 - December 3
- National Disability Insurance Scheme should benefit people with MND
Research update and focus on Palliative Care for people with MND
- Major breakthrough as researchers discover common cause in all forms of amyotrophic lateral sclerosis
- Evolving policies on the role of palliative care in neurological diseases confirm the philosophy of MNDcare approach
Featuring:
New featured content - Amyotrophic lateral sclerosis - A Review by Matthew C Kiernan and Others
Program now available for the 22nd International Symposium on ALS/MND - November 30 - December 2
Updates: Research and the International ALS/MND Symposium
The latest newsletters giving a summary of international and Australian research are now available. These highlight both the quantity and quality of research in progress within Australia and overseas.
Registration for the International ALS/MND meetings now available online - early bird ends 22 July.
Focus on carers
There is growing evidence that the provision of appropriate support for carers during the course of life limiting disease and into bereavement can reduce the risk of complicated grief.
A particular time of reflection - MND Week May 1-7
The annual MND Week is a time when MND Associations around Australia focus on raising the profile of MND through all genres of the media and a variety of activities. It is also a time when we pay tribute to the wider MND community - individuals and families currently living with MND, those who have died from MND, their carers and the health and community care professionals who by their commitment and skills make such a difference to managing throughout the course of the disease.
Thank you for your interest and dedication in your work with MND clients.
The focus for April's MNDcare newsletter is the Allied Professional's Forum. This forum, specifically for social, nursing, palliative and allied health professionals, is held annually the day prior to the main program of the International Symposium on ALS/MND.
Focus on Research
MNDCare provides a 'one stop shop' for clinicians who want to stay up to date with the very latest MND research. This site provides easy links to others that summarise the latest international research including plain English overviews and evaluations of recent research.
In this issue:
- two powerpoint presentations given by Dr David Oliver at the recent International ALS/MND Symposium in Orlando last December
- an A/V presentation on managing respiratory issues given by Dr Wolfe at the International ALS/MND Nurses Mini-Symposium
- the latest Cochrane review on enteral feeding.
Happy New Year to our subscribers and visitors!
Start Planning Now!
2011 is a landmark year for MND Australia and the Australian MND community as the International Symposium of ALS/MND will be held in Sydney in November/December.
The clinical stream of this international meeting is relevant to GPs, medical specialists, palliative care professionals, nurses, allied health professionals and personal care workers.
The themes of the Symposium and accompanying Allied Health Professionals Forum will be available soon.
December is always a very exciting month for the MND community. The International Symposium on ALS/MND is held annually during this month and we look forward to the exchange of information about best practice research and care. We will be able to summarise some of the most relevant findings of the Symposium in the January 2011 newsletter
Would you like to learn about approaches to communicating with someone with MND who is unable to speak?
Would you like to know a little more about how it feels to be a person living with MND who is in this situation?
Welcome to our new subscribers. It is encouraging to note that the number of visitors and subscribers to MNDcare is steadily growing. Since its launch on June 21 MNDcare has received 2337 visits from every state in Australia and also from overseas.
New guidelines published to assist with the respiratory management of people living with MND.
Help us promote the new MNDcare website - forward this email to your colleagues or publish the text below in your newsletter....
In Focus
- MND Week 2012
- International Research Update
- National MND Conference – Adelaide (Mon Sept 10)
- International ALS/MND Symposium 2012 – Chicago
Featuring:
- MND Week 2012 - watch for the blue cornflower - a sign of resilience and hope for people living with MND
- NDIS - Prime Minister demonstrates her support
- National and International Conferences - Call for Abstracts
- Nina Buscombe Award - apply now to support attendance at MND conferences
