ALS/MND conference presentations

22nd Meeting of the International Alliance of ALS/MND Associations

Over 100 delegates from 26 countries across six continents gathered in Brussels for the 22^nd meeting of the International Alliance of ALS/MND Associations to share initiatives and strategies for supporting people living with ALS/MND. Many International March of Faces banners adorned the room reminding us of the people living with ALS/MND around the world that we represent. This year’s March of Faces banner featured Michael Lee from NSW and Steven D’Alessio from WA. 

7th National MND Conference

8th National MND Conference, Melbourne 12 September 2016

Ask the Experts December 2016, Dublin

MND Connect 2016

Ask the Experts, Brussels 2014

25th International Symposium on ALS/MND

The International Symposium is the largest medical and scientific conference on MND/ALS. It is the premier event in the ALS/MND research calendar, attracting over 800 delegates, representing the energy and dynamism of the global MND research community.

Allcroft, P. 2012, 'Palliative approach to symptom management in motor neurone disease'

Allcroft, P. 2012 'Palliative approach to symptom management in motor neurone disease', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Allied Professionals Forum 2012

The Les Turner Foundation youtube channel features presentations from the International Allied Professionals Forum held on 4 December 2012 in Chicago, USA

Allied Professionals Forum 2013

The 2013 Allied Professionals Forum presentations are available for viewing on the International Alliance of ALS/MND Associations YouTube Channel

Allied Professionals Forum 2014

The 2014 Allied Professionals Forum presentations are available for viewing on the International Alliance of ALS/MND Associations YouTube Channel

ALS TDI Leadership Summit 2013

Webcast presentations from the 9th Annual ALS TDI Leadership Summit held on Thursday, October 3, 2013

Ask the Experts 2011

The MND Australia youtube channel features presentations from the International Ask the Experts session held on 28 November 2011 in Sydney, Australia

Ask the Experts 2013 MND NSW

The MND NSW youtube channel features presentations from their annual Ask the Experts session for people living with MND and their family and friends held in July 2013 in Sydney, Australia

Baldock, R. 2012, Motor Neurone Disease - Assess, Support, Communicate Project (MND-ASC)

Baldock, R. 2012, 'MND Assess, Support, Communicate Project (MND-ASC). Developing a model of care for assistive technology intervention for communication difficulties and the provision of appropriate and functional assistive technology', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Bentley, B. 2012, 'Dignity therapy’s ability to enhance the end of life for people with MND, their families: preliminary results from the dignity therapy/MND study

Bentley, B. 2012, 'Dignity therapy’s ability to enhance the end of life for people with MND, their families: preliminary results from the dignity therapy/MND study', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia.

Brennan, F. 2010. 'A palliative approach to MND'

Brennan, F. 2010. ‘A palliative approach to MND’, paper presented at the MND NSW Special Interest Group Workshop, Sydney, 28 October

Brown, H. 2012, 'Health Pathways: advocacy and innovative service delivery in Motor Neurone Disease'

Brown, H. 2012, 'Health Pathways: advocacy and innovative service delivery in Motor Neurone Disease', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia.

Burrell, J. 2012, 'Cognition in Motor Neurone Disease: The new frontier'

Burrell, J. 2012, 'Cognition in Motor Neurone Disease: The new frontier', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Craig, Sue.2012 'There's nothing you don't go through'

Craig, S. 2012, 'There's nothing you don't go through', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Dickie, B. 2012, 'Research Today: Implications for Tomorrow'

Brian Dickie, Director of Research MNDA, UK, 2012, 'Research Today: Implications for Tomorrow', presentation at the 20th International ALS/MND Symposium Ask the Experts session hosted by the Les Turner ALS Foundation, Chicago, USA

Hogden, A. 2012, 'What influences patients decision-making in MND care?'

Hogden, A. 2012, 'What influences patients decision-making in MND care?', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Jessop, A. 2012, 'Where there’s a Will there’s a Way'

Jessop, A. 2012, 'Where there’s a Will there’s a Way', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Kelly, E. 2012, 'Together we make a difference: multidisciplinary team planning meetings for people living with MND'

Kelly, E. 2012, 'Together we make a difference: multidisciplinary team planning meetings for people living with MND', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Lechtzin, N. 2012, 'Diaphragm Pacing in ALS: Turbulent or Transformative'

Lechtzin, N. 2012, Johns Hopkins Medicine, 'Diaphragm Pacing in ALS: Turbulant or Transformative', presentation at the 20th International ALS/MND Symposium Ask the Experts session hosted by the Les Turner ALS Foundation, Chicago, USA

Love, A. 2012, 'Communications technology for people with MND: Current picture and future directions'

Love, A. 2012, 'Communications technology for people with MND: Current picture and future directions', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Miles, K. 2012, 'MND: Living and Caring in the Moment. Coordinating, Anticipating, Responding through an Interdisciplinary Palliative Care Team Approach in Country SA'

Miles, K. 2012, 'MND: Living and Caring in the Moment. Coordinating, Anticipating, Responding through an Interdisciplinary Palliative Care Team Approach in Country SA', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Erjavic, S. 2010. ‘An Overview of MND’

Oliver, D. 2010 'Patients with Cognitive Change - the challenge for families and professionals'

Paper presented at the Allied Professionals Forum (APF), Orlando, Florida 10 December 2010. The APF is held on the day preceding the International ALS/MND Symposium each year.

Oliver, D. 2010 'Withdrawal of non-invasive ventilation - how can we help all involved?'

Paper presented at the Allied Professionals Forum (APF), Orlando, Florida 10 December 2010. The APF is held on the day preceding the International ALS/MND Symposium each year.

Schultz, D, 2012, 'Australian Motor Neuron Disease Registry: An Update'

Schultz, D. 2012, 'Australian Motor Neuron Disease Registry: An Update', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Shaw, P. 2012, 'NIV in ALS/MND: Where are we now and where are we going?'

Professor Pam Shaw, University of Sheffield, UK, 2012, 'NIV in ALS/MND: Where are we now and where are we going?', presentation at the 20th International ALS/MND Symposium Ask the Experts session hosted by the Les Turner ALS Foundation, Chicago, USA

Turner, B. 2012, 'Why we can't yet cure MND and what we are doing about it'

Turner, B. 2012, 'Why we can't yet cure MND and what we are doing about it', presentation at the 6th National MND Conference, hosted by MND South Australia, Glenelg, SA, Australia

Wolfe, L. 2012, 'Airway Clearance (AC): Options and Strategies'

Lisa Wolfe, MD, Northwestern University, USA, 2012, 'Airway Clearance (AC): Options and Strategies', presentation at the 20th International ALS/MND Symposium Ask the Experts session hosted by the Les Turner ALS Foundation, Chicago, USA

Wolfe, L. 2010. 'Respiratory update in ALS'

Wolfe, L. 2010. 'Respiratory update in ALS' presentation at the 6th Annual ALS/MND Nursing Mini-Symposium, a satallite meeting of the 2010 International ALS/MND Symposium, Orlando, Fl, USA