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8th National Motor Neurone Disease Conference
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For health and community care professionals
Al-Chahabi and Hardiman 2013 The epidemiology of ALS: a conspiracy of genes, environment and time
Andersen et al. 2007 Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group
Andersen et al. 2012 EFNS guidelines on the Clinical Management of Amyotrophic Lateral Sclerosis (MALS) - revised report of an EFNS task force
Aoun et al. 2016 Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists' perspectives
Aoun et al. 2017 Family carers experiences of receiving the news of a diagnosis of motor neurone disease
Aoun et al. 2016 Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better?
Ashworth et al. 2012 Treatment for spasticity in amyotrophic lateral sclerosis/motor neuron disease
Aoun et al. 2012 A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions
Averill et al. 2007 Psychological health in patients with amyotrophic lateral sclerosis
Baldinger et al. 2012 Treatment for cramps in amyotrophic lateral sclerosis/motor neuron disease
Beauverd et al. 2012 Recombinant human insulin-like growth factor I (rhIGF-I) for the treatment of amyotrophic lateral sclerosis/motor neuron disease
Benatar et al. 2009 Treatment for familial amyotrophic lateral sclerosis/motor neuron disease
Berlowitz et al. 2013 Identifying who will benefit from non-invasive ventilation in amyotrophic lateral sclerosis/motor neurone disease in a clinical cohort
Berlowitz et al. 2016 Identifying who will benefit from non-invasive ventilation in amyotrophic lateral sclerosis motor neurone disease in a clinical cohort
Bloomer et al. 2011 End of life care: The importance of advance care planning.
Bongioanni et al. 2004 (updated 2009) Neurotrophic factor (CNTF) for amyotrophic lateral sclerosis/motor neuron disease
Borasio and Voltz 2006 'Advance directives' in 'Palliative Care in Amyotrophic Lateral Sclerosis from Diagnosis to Bereavement'
Brettschneider et al. 2013 Drug therapy for pain in amyotrophic lateral sclerosis or motor neuron disease
Carers Australia 2010 Supporting family carers
CareSearch
Caring Safely at Home
Chio et al. 2009 Prognostic factors in ALS: A critical review
Clayton et al. 2007 Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers
Cox et al. 2007 Pathogenesis of motor neurone disease
Dalbello-Haas and Florence 2013 Therapeutic exercise for people with amyotrophic lateral sclerosis or motor neuron disease
Fang et al. 2013 Repetitive transcranial magnetic stimulation for the treatment of amyotrophic lateral sclerosis or motor neuron disease.
Gallagher and Monroe 2006 Psychosocial care
Hardiman 2007 Multidisciplinary care in motor neurone disease
Heffernan et al. 2006 Management of respiration in MND/ALS patients: an evidence based review
Hudson et al. Clinical Practice Guidelines for the Psychosocial and Bereavement Support of Family Caregivers of Palliative Care Patients
Katzberg et al. 2011 Enteral tube feeding for amyotrophic lateral sclerosis/motor neuron disease
Kiernan et al. 2011 Amyotrophic Lateral Sclerosis - Review Article
Kinnersley et al. 2007
Lambert 2006 Spiritual care
Lillo and Hodges 2009 Frontotemporal dementia and motor neurone disease: overlapping clinic-pathological disorders
McCabe and O'Connor 2010 Economic impact of neurological illness on well-being
McLeod and Clarke 2007 A review of psychosocial aspects of motor neurone disease
McMurray and Harris 2006 Bereavement
Merrilees et al. 2010 Cognitive and behavioral challenges in caring for people with frontotemporal dementia and amyotrophic lateral sclerosis
Miller et al. 2012 Riluzole for amyotrophic lateral sclerosis ALS/motor neuron disease MND
Miller et al. 2009a Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies
Miller et al. 2009b Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, cognitive/behavioral impairment
Miller et al. 2013 Quality improvement in neurology: Amyotrophic lateral sclerosis quality measures
Mitchell et al. 2008 Multidisciplinary care planning and teamwork in primary care
Mitsumoto et al. 2005 Promoting excellence in end-of-life care in ALS
MND Association, 2011, 'Multidisciplinary team working: a best practice guide'
MND Australia 2014 Motor neurone disease aspects of care: for the primary health care team
MND Australia 2010 Motor neurone disease aspects of care: for staff of residential care facilities
Mockford et al. 2006 A review: carers, MND and service provision
MND Australia 2017 Motor neurone disease aspects of care: for the primary health care team
Murphy 2004 Communication strategies of people with ALS and their partners
Murray and McKenzie 2007 Respiratory function in motor neurone disease
National End of Life Care Programme, 2010, Improving end of life care in neurological disease a framework for implementation
National Institute for Health and Care Excellence 2016 NICE: Guideline on MND Management
National Institute for Health and Clinical Excellence 2001 NICE: Guidance on the use of riluzole (Rilutek) for the treatment of motor neurone disease
National Institute for Health and Clinical Excellence 2010 NICE: The use of non-invasive ventilation in the management of motor neurone disease
Ng et al. 2009 Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease
Ng et al. 2015 Symptomatic treatments for amyotrophic lateral sclerosis/motor neuron disease
Oliver et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease.
Orrell 2010 Motor neuron disease: systematic reviews of treatment for ALS and SMA
Orrell et al. 2007 Antioxidant treatment for amyotrophic lateral sclerosis/motor neuron disease
OT Australia 2010
Palliative Care and Neurological Conditions Position Statement 2014
Palliative Care Australia 2008 Carers and end of life: position statement
Pastula et al. 2012 Creatine for Amyotrophic Lateral Sclerosis/Motor Neuron Disease
Physiotherapy Practice Research in Motor Neurone Disease
Radunovic et al. 2013 Mechanical ventilation for amyotrophic lateral sclerosis/motor neuron disease
Rafiq et al. 2012, Respiratory management of motor neurone disease: a review of current practice and new developments
Ramirez et al. 2008 Fatigue in amyotrophic lateral sclerosis: frequency and associated factors
Ravits et al. 2013 Deciphering amyotrophic lateral sclerosis: What phenotype, neuropathology and genetics are telling us about pathogenesis
Rudnicki et al. 2015 Symptom management and end of life care
Sackett B and Sakel M, 2011, Motor Neurone Disease - A Patient's Journey
Stavroulakis et al. 2013, Gastrostomy use in motor neurone disease (MND): A review, meta-analysis and survey of current practice
Stem Cell Treatments - A Quick Guide for Medical Practitioners
Stone and O'Leary 2009 Systematic review of the effectiveness of botulinum toxin or radiotherapy for sialorrhea in patients with amyotrophic lateral sclerosis
Strong et al. 2009 Consensus criteria for the diagnosis of frontotemporal cognitive and behavioural syndromes in amyotrophic lateral sclerosis
Tai et al. 2008 A review of emerging access technologies for individuals with severe motor impairments
Talman et al. 2009 Clinical phenotypes and natural progression for motor neuron disease: analysis from an Australian database
Talman et al. 2016 Identification and outcomes of clinical phenotypes in amyotrophic lateral sclerosis/motor neuron disease: Australian Motor Neuron Disease observational cohort
Tomik and Guiloff 2010 Dysarthria in amyotrophic lateral sclerosis: a review
Turner and Al-Chalabi 2007 Clinical phenotypes
Turner et al. 2013 Controversies and priorities in Amyotrophic Lateral Sclerosis
Vrijsen et al. 2013 Non-invasive ventilation in amyotrophic lateral sclerosis
Vucic et al. 2007 Diagnosis of motor neurone disease
Young et al. 2011 Treatment for Sialorrhea (excessive saliva) in people with motor neuron disease/amyotrophic lateral sclerosis (review)
Zoing 2007 Motor neurone disease: a nurse's perspective
For people living with MND
Breathing and MND: an introduction - for people living with MND
Breathing and MND: medications and non-invasive ventilation - for people living with MND
Breathing and MND: what you can do - for people living with MND
Carers Kit MND NSW 2007
Cognitive and behaviour change in MND
Considering gastrostomy - for people living with MND
Familial MND and genetic testing - for people living with MND
Insomnia MND Vic 2010
MND Evidence-based interventions: an overview - for people living with MND
Motor Neurone Disease: More Facts - for people living with MND
Motor Neurone Disease: Some Facts - for people living with MND
Multidisciplinary care: an overview - for people living with MND
Multidisciplinary care teams: an overview - for people living with MND
Planning Ahead - for people living with MND
Riluzole: an overview - for people living with MND
Talking with young people about mnd
Stem Cell Treatments - Frequently Asked Questions
General
BBC Radio 4 - Interview with Jane Hawking
Contacting your local MND Association
Deloitte Access Economics Report 2015 - Economic Analysis of MND in Australia
MND Australia 2009 Response to NHHRC interim report - A Healthier Future for all Australians
Listening to Janet
MND Models of Care
MND Patient Rehabilitation Pathway, Neuropalliative Rehabilitation Model of Care
Podcast - Dr Amanda Piper, Ask the Experts, Breathing Under Pressure
Podcast - Professor Dominic Rowe, Ask the Experts, About MND
Podcast - Dr James Burrell, Ask the Experts, What's New in MND Research
Statement of good practice for the management of ALS/MND
Victorian Government Department of Human Services 2008 Motor neurone disease and palliative care - Interim report on the MND Pathway Project - April 2008
Visit the MND Australia website
Vodcast - Interview with Dr Peter Martin: Breaking Bad News
Vodcast - Interview with Rod Harris: Motor Neurone Disease (MND) and palliative care
Tony Judt on having MND
Sprituality at End of Life - 2011
Zora's Story
ABC 7.30 - Familial MND
The Last Word: Matt Eustace
Understanding the National Relay Service
Healthtalkonline
Non Invasive Ventilation Training Videos
Steve's Story
ALS TDI postcards from around the world
Motor neurone disease neck collars
Science With Chris Smith - RN Breakfast
ALS/MND conference presentations
22nd Meeting of the International Alliance of ALS/MND Associations
7th National MND Conference
8th National MND Conference, Melbourne 12 September 2016
Ask the Experts December 2016, Dublin
MND Connect 2016
Ask the Experts, Brussels 2014
25th International Symposium on ALS/MND
Allcroft, P. 2012, 'Palliative approach to symptom management in motor neurone disease'
Allied Professionals Forum 2012
Allied Professionals Forum 2013
Allied Professionals Forum 2014
ALS TDI Leadership Summit 2013
Ask the Experts 2015 - MND NSW
Ask the Experts 2011
Ask the Experts 2013 MND NSW
Baldock, R. 2012, Motor Neurone Disease - Assess, Support, Communicate Project (MND-ASC)
Bentley, B. 2012, 'Dignity therapy’s ability to enhance the end of life for people with MND, their families: preliminary results from the dignity therapy/MND study
Brennan, F. 2010. 'A palliative approach to MND'
Brown, H. 2012, 'Health Pathways: advocacy and innovative service delivery in Motor Neurone Disease'
Burrell, J. 2012, 'Cognition in Motor Neurone Disease: The new frontier'
Craig, Sue.2012 'There's nothing you don't go through'
Dickie, B. 2012, 'Research Today: Implications for Tomorrow'
Hogden, A. 2012, 'What influences patients decision-making in MND care?'
Jessop, A. 2012, 'Where there’s a Will there’s a Way'
Kelly, E. 2012, 'Together we make a difference: multidisciplinary team planning meetings for people living with MND'
Lechtzin, N. 2012, 'Diaphragm Pacing in ALS: Turbulent or Transformative'
Love, A. 2012, 'Communications technology for people with MND: Current picture and future directions'
Miles, K. 2012, 'MND: Living and Caring in the Moment. Coordinating, Anticipating, Responding through an Interdisciplinary Palliative Care Team Approach in Country SA'
Erjavic, S. 2010. ‘An Overview of MND’
Oliver, D. 2010 'Patients with Cognitive Change - the challenge for families and professionals'
Oliver, D. 2010 'Withdrawal of non-invasive ventilation - how can we help all involved?'
Schultz, D, 2012, 'Australian Motor Neuron Disease Registry: An Update'
Shaw, P. 2012, 'NIV in ALS/MND: Where are we now and where are we going?'
Turner, B. 2012, 'Why we can't yet cure MND and what we are doing about it'
Wolfe, L. 2012, 'Airway Clearance (AC): Options and Strategies'
Wolfe, L. 2010. 'Respiratory update in ALS'
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Ask the Experts 2015 - MND NSW
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MND NSW Ask the Experts 2015
Update your knowledge on current trends in MND research and aspects of stem cell research in MND by watching online presentations from the annual
MND NSW Ask the Experts
meeting held in Sydney in July 2015
View the following presentations:
Professor Matthew Kiernan
, Forefront Research MND Clinic, University of Sydney and Chairman of the MND Australia Research Committee provides an overview of MND
Justin Yerbury
of the University Of Wollongong provides a clear summary of the latest approaches to MND research
Associate Professor Megan Munsie
, Head of the Education, Ethics, Law and Community Awareness Unit, Stem Cells Australia speaks about Hope, Hype and Reality in MND – facts about stem cells and their application to ALS/MND
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