Aoun et al. 2017 Family carers experiences of receiving the news of a diagnosis of motor neurone disease
Communicating the diagnosis of MND should always include family carers
• Information on support provided by MND Associations should be available at diagnosis
• More attention given to family carers as a vital member of the MND care triad
• The duration of the consultation is a major factor that affected satisfaction
• Lack of empathy by some neurologists is a major source of dissatisfaction
• Neurologists may require education and training in communicating an MND diagnosis
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